There are many ways our MS tribe can help each other. One is sharing resources. Here is a list of helpful programs, services, and links to explore:
- Multiple Sclerosis Association of America: MSAA has three main programs; Cooling, which includes cooling kits featuring products like cooling vests, collars, hats and pillowcases. MRI Access Fund providing financial support and Equipment Distribution, which includes: wheelchairs, canes, walkers, hospital beds, grab bars, easy-grip dishes, and utensils, toilet seat raisers, tools to make dressing easier.
- Multiple Sclerosis Foundation: MS Focus provides grants for Emergency Assistance, Healthcare Assistance, Home Care Assistance, Health & Wellness, Transportation, and my favorite; Brighter Tomorrow Grant, for things to improve life! They also offer programs for cooling, computers and assistive technology.
- National Multiple Sclerosis Society: Connects you with other resources and services to help with the financial challenges of paying for heating, cooling, rent, mortgage, temporary home health aides, transportation, accessibility modifications to homes and automobiles and durable medical equipment. They also provide free in-home case management.
- Can Do MS: Provides free online health and wellness education programs, a one-day JUMPSTART® educational and interactive program to learn skills and tools to adopt healthy lifestyle behaviors, and a Take Charge® wellness retreat.
- Health Care Journey is a Virtual MS Center that allows you to ask questions to leading MS specialists. They have information on MS health and wellness, symptoms, news and research. There are also blogs by patients, physicians, and physical therapists.
- Medicare savings program
- Pan Foundation
- HealthWell Foundation
- Patient Services Program
- The Assistance Fund
- Patient Advocate Foundation Co-Pay Relief Program
- Division of Disability Services/ Personal Assistance Program
- Well Spouse Association
- United Way connects people with community resources and programs.
- Needy Meds
- Friends of Man
- https://www.mssociety.org.uk/care-and-support/financial-help/apply-for-an-ms-society-grant Offers two grants: Health and Wellbeing and Carer’s Grant.
- https://www.ms-researchandrelief.org/grants/ Offers financial assistance for aids, adaptions, and equipment.
- https://www.mstrust.org.uk/life-ms/your-finances/grants-and-financial-help Lists a variety of resources to explore.
- Ampyra: ampyra.com/cost-patient-assistance
- Aubagio: MSOnetoOne.com
- Avonex: abovems.com
- Betaseron: betaseron.com/betaplus-support-program/financial-support/
- Copaxone: sharedsolutions.com
- Extavia: extavia.com
- Gilenya: gilenya.com/c/ms-pill/go-program
- Acthar: Support & Access Program – actharmsrelapse.com
- MSOne2One: lemtrada.com
- MS LifeLines:mavenclad.com
- Alongside MS: mayzent.com
- Ocrevus: Genentech-Access.com
- Plegridy,Tecfidera,Tysabri & Vumerity: abovems.com
- Rebif: mslifelines.com
- Inquire if your local church has a Benevolence Fund.
- Check out programs and resources provided by your local and state, Department of Health and Human Services.
- Community Resource Finder.
- The Social Security Disability handbook has a specific neurological impairment listing for MS. Link with more info: https://www.ssdrc.com/multiple-sclerosis.html
- To find an independent living center, call your state’s vocational rehabilitation agency. You can also call the National Council on Independent Living at 703-525-3406 or go to ncil.org.
- Rocky Mountain MS Center https://www.mscenter.org/ provides a comprehensive and integrated wellness approach to MS and related diseases, life-changing support services, and cutting-edge research. .
- Disability Lawyer- New Jersey- Greg Hobbie 732-766-5682 www.Hobbielaw.com
- https://www.spoonieday.com/ An app developed by Julie Blackburn, to Track, Plan & Manage your daily energy output, AKA “spoons.”
(The links shared in this article are informational only. Please verify all resources)
- Most of the resources listed are in the US. I had difficulty finding resources for other countries. If anyone has other resources to share, please email them to firstname.lastname@example.org .